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Australian influencer Erin Oudshoorn has introduced the demise of her six-year-old daughter, Lulu.
Oudshoorn shared a devastating tribute to her daughter on the Instagram web page the place over time, she chronicled Lulu’s expertise with a uncommon type of epilepsy known as West syndrome.
“It’s with essentially the most painful, shattered coronary heart to share that our darling Lulu handed away peacefully in our arms yesterday, surrounded and profoundly beloved on by all of her prolonged household,” Oudshoorn wrote in a put up shared Tuesday. The put up’s image confirmed Oudshoorn and her husband holding little Lulu’s hand.
“Dave and I are simply totally damaged. There merely aren’t sufficient phrases to specific our agony. Our child lady is gone,” her caption learn.
Oudshoorn beforehand shared how Lulu was identified with West syndrome, additionally known as childish epileptic spasms syndrome, when she was simply 11 months outdated. West syndrome is a type of epilepsy that develops in infants underneath two years outdated. Docs advised Oudshoorn that Lulu’s situation was incurable, and mentioned they didn’t imagine her mind had shaped correctly in utero.
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She handled spasms and seizures all through her life, which Oudshoorn described on a podcast as “actually brutal” for his or her household, together with Lulu’s youthful brother.
“Lulu suffers from a really uncommon and catastrophic type of epilepsy,” the mother mentioned on the Mummy Village podcast in March 2023. “The seizures are brutal, to be trustworthy. She was identified very younger, at 11 months of age.”
She defined: “I didn’t actually know something about epilepsy. I assumed that we might discover seizure freedom and seizure reduction with remedy. Sadly, Lulu has tried and examined about 15, and [nothing worked]. The docs can also’t discover a trigger for her epilepsy, so she’s left seizing all day on daily basis and it’s completely barbaric to observe.”
Oudshoorn developed a following underneath her deal with @little.lulu.love, the place she documented Lulu’s fluctuating well being with day by day updates and launched the Lulu Love Venture to lift consciousness for West syndrome.
Tributes to Lulu from devastated followers poured in underneath Tuesday’s put up, as one Instagram consumer wrote: “I couldn’t sleep a wink final night time eager about you. I can’t presumably start to think about how you feel and the way shattered you and Dave are. You might be such an unbelievable dad and mom who confirmed Lu unconditional love and assist and I’m simply so so sorry this has occurred. Relaxation in everlasting love and peace Lu, ceaselessly 6 xxx.”
Fellow household influencer Brittany Noonan commented, “I’m so extremely sorry Erin , that is essentially the most coronary heart shattering information. No phrases will ever be sufficient. My coronary heart and ideas are with you and your stunning household. Lulu actually touched my coronary heart and I thanks for sharing her story with us. You might be one wonderful mom ceaselessly advocating for her by means of the whole lot she endured. I’ll always remember your stunning lady Lulu. Could she relaxation simple.”
